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Episode Title: What you need to know Before You test your DNA
Jules Polonetsky serves as CEO of the Future of Privacy Forum, a Washington, D.C.-based non-profit organization that serves as a catalyst for privacy leadership and scholarship, advancing principled data practices in support of emerging technologies. FPF is supported by the chief privacy officers of more than 130 leading companies, several foundations, as well as by an advisory board comprised of the country’s leading academics and advocates. FPF’s current projects focus on Big Data, Mobile, Location, Apps, the Internet of Things, Wearables, De-Identification, Connected Cars and Student Privacy.
Jules previous roles have included serving as Chief Privacy Officer at AOL and before that at DoubleClick, as Consumer Affairs Commissioner for New York City, as an elected New York State Legislator and as a congressional staffer, and as an attorney.
Jules’ Bio: https://fpf.org/jules-polonetsky/
Jules’ LinkedIn Profile: https://www.linkedin.com/in/julespolonetsky
Future of Privacy Forum: https://fpf.org
Best practices for Genetics Services according to the Future of Privacy Forum: https://fpf.org/2018/07/31/privacy-best-practices-for-consumer-genetic-testing-services/
Washington Post Article: https://www.washingtonpost.com/technology/2018/07/31/ancestry-andme-others-say-they-will-follow-these-rules-when-giving-dna-data-businesses-or-police/
The GINA Privacy Act: https://en.wikipedia.org/wiki/Genetic_Information_Nondiscrimination_Act
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